Patient Advocate, Chronic Illness Blogger and Founder of Facebook Support Group. I am an RN by trade but over the last few years I have transistioned into a role that I feel I was always meant to do! I have only been officially diagnosed with Lupus for 6 years however looking back my first big flare was probably when I was a teenager. Beaides Lupus I also suffer from a laundry list of other conditions, so I can relate to many. I feel like my most important role in life is to spread awareness, advocate for those who can’t and provide support for those who need it.
Amber is an administrator in our Facebook support group Lupie Groupies . She also does a blog. She is always there with support, info on medications, and the latest research info into this disease. . The best thing about Amber is how much she cares for all of us in the group. Always reaches out to whomever needs it. She even sends cards! — Tracy
I’m a Patient Leader