Jed was diagnosed at the age of 12 with Ankylosing Spondylitis. In 2000 he contracted Lyme disease. He has been an advocate for both AS and Lyme since 2007 when he founded his support group Living With Ankylosing Spondylitis. Jed also is a group leader for SAA. He has written for publications about AS and disability issues in the workplace. Most recently he has begun writing and moderating for AnkylosingSpondylitis.net part of the Health Union network of chronic illness informational sites.
Lake St Louis, MO
Jed has built a community on Facebook for people with AS that is currently just shy of 20,000 members. He has nursed it for years, patiently growing the community and supporting everyone in it with careful and caring moderation, including being firm in his commitment to allowing diverse views while encouraging facts-sharing. — Charis
I’m a Patient Leader