At the age of 15 I was diagnosed hypermobility syndrome and chronic pain syndrome, after finding support through others online with similar conditions I to set about raising awareness. I set up my blog in December 2016 in order to do so alongside my twitter and Instagram my viewers grew and I regularly now receive emails asking for advice, which I happily provide. In November 2017 I was diagnosed with POTS which has thrown a whole new set of challenges at me none the less I have continued to raise awareness and have recently helped in writing a chapter for a book for rheumatologists. I want to share my story to show others they are not alone and provide comfort.
Niamh is an incredibly inspiring individual. We met at an Arthritis Care event in September 2017 (a charity which, since then she's began volunteering for), and she immediately began talking to me and making me feel welcome! Her blog and her instagram page are so inspirational, and helped me become more confident in sharing my story with others :) — Eleanor
I’m a Patient Leader