Hello, my name is Gabriella. I was diagnosed with epilepsy of both Tonic Clonic and Absence seizures in my frontal lobe at the age of seven. Years of various medications, has changed the way I think, the changes in my mood, the beatings on my bones, memory loss, and now my hearing. I have undergone the VNS (Vagal Nerve Stimulator) surgery. After showing less improvement, my VNS was turned off. I will be undergoing the Invasive EEG Procedure to determine which plan of action will be next for my particular case. I have three outcomes: remove the area, the RNS surgery, or keep going the way I am. The blog I've created is to help those who feel alone or just needing to hear a real experience.
To watch this beautiful, strong, and yes sarcastic and funny young woman deal with the challenges of having refractory epilepsy for the past 25 years, be brave enough to share her story and do so in such a creative, candid, and mind you 25 year summary in 3 weeks, to help share, relate to others, has endurance to be a rookie in epilepsy advocacy! — Angi
My daughter has entered the blog world with passion and purpose! She is sharing her story of living with intractable epilepsy; hoping to connect with others, let others living with the same diagnosis they aren't along, and are tells it with humor, sarcasm, seriousness, and a candid approach! So proud of her courage and willing to bring awareness! — Angi
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