Carrie Kellenberger

Patient Leader

I've been a chronic illness advocate since 2009. I'm a Canadian expat living in Taiwan with Ankylosing Spondylitis, Fibromyalgia, and Myalgic Encephalomyelitis, among other health issues. I write about my illnesses and advocacy work on many health sites, including my site, My Several Worlds, a Best Blog for Fibromyalgia in 2018. I am a patient leader and captain of The Walking Spondies for Walk Your AS Off. I'm also a Founding Director for Walk AS One, a 501c3 non-profit in the US. Living life passionately with limitations from chronic illness takes more than many of us might have to give. My illnesses have shaped my worlds and have inspired me to support others in similar situations.


Patient Leader Hero

She does some great work with "Walk Your AS off" and all the articles she writes for various publications. Also very active on social media and love that there's someone else within Asia I can connect with!  — Sheryl

Carrie has touched so many lives in her role as an advocate for several diseases, among them, ankylosing spondylitis. She has connected with people from around the world, spreading awareness. Carrie's dedication, passion, and leadership make her an ideal candidate for this award.  — Gina

Carrie is an amazing women. She works tirelessly to raise awareness for Ankylosing Spondylitis, Fibromyalgia and ME/CFS. She is also always there for those who can benefit from her knowledge and support. Carrie is an incredible woman who inspires me every day with her strength. The amount she does for the pain she's in is unreal.  — Jessica

Carrie is tireless in her advocacy for those suffering from autoimmune disorders. She is one of the most dynamic people I know and she never fails to impress me with her ability to patiently communicate her experiences to those who have not experienced chronic suffering. In spite of her setbacks, she persists. Carrie is a true hero.

She is a Legend, making a difference in peoples life!

Carrie Kellenberger

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