Christine Von Raesfeld is a leader in bringing a critically needed patient perspective to cutting edge medical innovations. A patient advocate committed to providing patients with chronic and rare diseases with the support they need, Christine works with patient advocacy organizations, industry representatives, and individual patients and their family members. Living with many rare and chronic diseases, she believes that in order to foster understanding and empowerment, patients must be treated as people first. Christine’s drive to make lives better for patients has been nationally recognized. Earlier this year, she spoke on stage at the Startup Health Festival as an invited guest of Sanguine Biosciences. In 2018, Christine was chosen as a member of the Team of Patient Advisors for PatientsLikeMe, a company working to create digital avatars of patients and ‘healthy’ individuals so that in the future, medication can be first tested on the digital recreations. She was also recognized as a Wego Health 2018 Top 10 Healthcare Collaborators Patient Leader as well as being named one of the Silicon Valley Business Journal's 100 Women of Influence for 2019. On the community side, Christine currently serves as a Board member of More than Lupus, a ‘start-up’ patient advocacy organization. She also volunteers her time with the only patient-led national lupus advocacy organization, the Lupus and Allied Diseases Association, as well as many other grassroot organizations. She provides an honest patient perspective at conferences which helps companies advance their patient-centric initiatives. Christine’s conference speaking engagements, consulting efforts, and ability to share her personal experiences have allowed her to bring a much needed change to the healthcare industry while bridging the gap between biopharmaceutical and patient stakeholders.
Santa Clara, CA
She works with the Lupus Foundation of Northerns California and Patients Like Me. She advocates through social media, online, and in person, speaking and doing Facebook lives. She goes to the Capital to speak and help advocate for Lupus research. She is the leading force behind May being proclamed Lupus Awareness Month in many cities. — Whitney
I’m a Patient Leader