Skye Miu Steppe

Patient Leader

At 12 years old I was diagnosed with Fibrous Dysplasia in the entire right side of my face and skull, I spent years embarrassed of myself because of my chronic illness. I was bullied for my facial deformity, scars, surgeries and was told I was faking and lying about my illness and the pain that my FD causes me. To date, I have had three facial reconstructive surgeries, two bone grafts, and one cadaver bone. I spend my time creating awareness videos, writing articles and running my own nonprofit, FD Warriors Inc. I encourage others to speak out about their daily struggles through my own website and social media pages. I have Fibrous Dysplasia, but it no longer defines . who I am.


Sweetwater, TN

Past Awards Participation

Sixth Annual WEGO Health Awards


Patient Leader Hero
Skye Miu Steppe

You Might Also Like


Patient Leader Hero Nominee

Mike Hoskins

Best Kept Secret Nominee

Patient Leader Hero Nominee