Amanda is a public speaker, rare disease advocate, personal coach, and consultant for pharmaceutical companies, businesses, and non-profit organizations. She is also a nurse with over thirty years of combined experience in the health care industry, non-profit, retail and business management. Recognized nationally by Facebook in 2016 as one of the top 100 Facebook Group admins in the United States she continues to work with Facebook as a Power Admin Mentor and Beta Tester in Facebook Groups. As an innovative media-fluent consultant and multi-media strategist, Amanda specializes in strategic planning, online advocacy, community building, and enjoys teaching advocates, entrepreneurs, and leaders to create a customized media plans and online communities that enrich their brand. Amanda is passionate about empowering others and inspiring adaptive entrepreneurship as a speaker, consultant, and coach, she believes we all have a purpose, and the power to change the world. CEO of PurposeWorks Consulting & Coaching, Founder and Board Member Dysautonomia Support Network, Board Member The Seenajah Project, Dysautonomia International Patient Advisory Board 2013, Bobby Jones CSF Chiari Physician Steering Committee, DSN Backpack Health Steering Committee Member, 2019 Judge for WEGO Health Awards and the creator of the DSN Patients Choice Awards.
I’m a Patient Leader