Amanda Marie

Patient Leader

I understand the challenges that Dysautonomia and Ehlers-Danlos Syndrome can bring from the perspective of the patient, advocate, caregiver, and nurse. I have combined my professional knowledge and personal experience to create a patient-focused, global support network that encompasses 65 support, and lifestyle clubs, created to improve the patient experience. As the President of the Dysautonomia Support Network, I have had the privilege to create programs such as DSN volunteer programs, scholarships and service dog grant programs. In 2018 have educated, raised awareness with researchers at the NIH, lobbied for research funding on Captial Hill and presented patient workshops at conferences.


Johnston, RI


Healthcare Collaborator: Patient Best in Show: Facebook

Past Awards Participation

Sixth Annual WEGO Health Awards


Advocating For Another Best in Show: Facebook
Amanda Marie
Endorse Amanda Marie (41)

What is an endorsement?

You Might Also Like

Megan, The Front Butt YouTuber

Best in Show: YouTube Nominee

Best in Show: Youtube Nominee

Shawntel Bethea

Advocating For Another Nominee

Rookie of The Year Nominee

The Psych Central Show With Host Gabe Howard

Hilarious Health Activist Nominee

Health Activist Hero Nominee

Add Your Nomination