Sue Jackson

Patient Leader

I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. Fior the past 12+ years, I have written a blog about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges. Through constant effort to learn more, keep up with research, and help my son and myself, we have found a variety of effective treatments that help us to both live semi-normal, active lives again. Through my blog, I share that knowledge and experience with other patients, doctors, and caregivers.


Hockessin, DE


Best in Show: Blog Patient Leader Hero

her blog was the first i found to help me and I've stuck with it ever since, it has everything i need for info and experience and support.  — MEcuperate

Sue Jackson

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