Leslie

Patient Leader

NAME IS LESLIE HILLBURN I WAS DIAGNOSED WITH MS IN AUGUST OF 2003. MY SYMPTOMS ARE CHRONIC FATIGUE (SEVERE) WEAKNESS ON MY ENTIRE RIGHT SIDE, MOST DAYS I WALK NORMAL BUT ON BAD DAYS I HAVE A HUGE LEAN AND TEND TO WALL WALK! , I GET SEVERE MS HEADACHES, LEG SPASTICITY IN BOTH LEGS MORE SO ON THE RIGHT. I DROP THINGS AND SLUR ALOT. I HAVE A TOTAL HEAT INTOLERANCE WHICH MOST OF US DO! I GET SHORT TERM MEMORY LOSS NOT SURE IF IT IT AGE RELATED OR MS LOL. I DO GET SEVERE DEPRESSION AT TIMES BUT USUALLY ONLY WITH RELAPSES, I HAVE HAD 4 BAD ONES SINCE MY DIAGNOSIS AND THAT IS ONE OF THE REASONS I GAVE UP VOLUNTEERING FOR EMS AFTER 17 YEARS. I WAS BLESSED WITH A VERY SUPPORTIVE FAMILY THAT MOST TIMES UNDERSTANDS MY MOODINESS! I DECIDED TO MAKE A SUPPORT PAGE CALLED WE'RE NOT DRUNK WE HAVE MS SO I COULD MEET PEOPLE THAT UNDERSTAND ME AND WE WOULD HAVE A PLACE TO COME TO. JUST INCASE YOU WERE WONDERING WHY I PUT SO MANY TIGERS ON MY PAGE HERE IS WHY! A TIGER IS A SILENT BUT STRONG FIGHTER, YOU NEVER KNOW WHAT IT WILL DO NEXT (LIKE MS AND OUR BODIES) ONCE IT SETS OUT TO DO SOMETHING IT WILL NOT STOP! LAST BUT NOT LEAST IT NEVER GIVES UP! THAT SOUNDS LIKE WHAT US MS'ERS ARE!!!! WE WILL FIGHT TO THE END AND NEVER GIVE UP! THESE ARE MY BELIEFS! YOU KNOW OUR LIVES ARE SO PRECIOUS AND HOPE, FRIENDS, FAMILY AND LAUGHTER IS WHAT GETS US THE THE WORST DAYS OF OUR LIVES! I GET MANY MESSAGES ABOUT HOW I CAN MAKE A COMMENT ABOUT MY DISABILITY LIKE IT IS NO BIG DEAL, OR JOKE ABOUT IT. HERE IS MY ANSWER............ LIFE IS SHORT, ONLY YOU CAN MAKE YOUR LIFE STORY! I CHOOSE TO MAKE MY LIFE STORY A HAPPY ONE! I WANT MY LEGACY TO BE, THAT NUT ALWAYS SAID THIS OR DID THAT SHE COULD ALWAYS BRING A SMILE AND I WANT IT TO BE THE TRUTH. WORKING WITH EMS FOR SO MANY YEARS AND VOLUNTEERING HAS BEEN MY PASSION I HAVE HELD MANY HANDS AND WATCHED MANY LAST BREATHS TAKEN. I HAVE SEEN PEOPLE IN TOTAL FEAR OF DYING, AND MANY THAT HAVE DROPPED ME TO MY KNEES BECAUSE I COULDN'T UNDERSTAND WHY THEY LEFT SO YOUNG. WHEN OUR PAGERS WOULD GO OFF YOU GO THROUGH THE SCENARIO OF WHAT THE CALL MAY BE LIKE WHEN YOU GET THERE AND HOW YOU WILL HANDLE IT, MY FIRST REACTION WHEN I WOULD GET ON A SCENE WAS TO DISTRACT THE PATIENT TO HELP CALM THEM DOWN AND EASE SOME OF THE STRESS OF THE SITUATION AT HAND. THAT IS WHAT I WAS GOOD AT! IT LOWERS BLOOD PRESSURE, IT CAN HELP VITALS, AND IT ABSOLUTELY HELPS TO TAKE BETTER CARE OF THE PATIENT! SO SOMETIME I MAY APPEAR TO BE A LITTLE CALLUS WITH SOME OF MY JOKES BUT ONLY THOSE OF US THAT ARE TRULY LIVING DAY TO DAY WITH ANY CHRONIC ILLNESS KNOW HOW IT FEELS. FOR THE CAREGIVERS WE ARE NOT BEING SMARTYPANTS WE ARE SIMPLY COPING WITH THE MOMENT! LAUGHTER IS THE GREATEST GIFT THAT WE CAN GIVE AS HUMAN BEINGS IT SHOWS THAT WE ARE REAL AND COMPASSIONATE! I REALLY ALSO WANT TO TELL EVERY CAREGIVER/ LOVED ONE/ FRIEND/ NIGHT IN SHINING ARMOR/ HERO THANK YOU FOR BEING THERE! THANK YOU FOR TRYING TO UNDERSTAND! THANK YOU FOR YOUR STRENGTH WHEN WE ARE DOWN! THANK YOU FOR CARING! SO I HOPE THIS EXPLAINS WHAT WE ALL FEEL I COULD GO ON FOR DAYS ABOUT THIS BUT WE DON'T WANT TO NOT ONLY PULL OURSELVES DOWN WITH PITY , WE DON'T WANT TO PULL THOSE AROUND US DOWN EITHER. ANGER IS A VICIOUS CYCLE AND HARBORING ONLY HURTS YOU AND THOSE YOU LOVE. I WOULD MUCH RATHER SEE A SWEET SMILE AND EYES LIGHT UP IF ONLY FOR A MOMENT OR ACTUALLY GET TO SEE A RARE BIG BELLY LAUGH FROM SOMEONE THAT IS GOING THROUGH HELL! SOMETHING THAT ALL OF MY LIFE FRIENDS KNOW ME FOR IS THESE SAYINGS..... DON'T FORGET TO SAY I LOVE BECAUSE YOU NEVER KNOW IF IT WILL BE THE LAST CHANCE YOU GET. FLARES ARE LIKE A HURDLE IN THE ROAD OF LIFE, EVERYONE HAS THEM! I HAVE SEEN THAT LAST CHANCE SLIP BY TOO MANY TIMES. SO NEXT TIME THAT YOU FEEL ANGRY OR JUST A LITTLE OUT OF SORTS BECAUSE OF A SITUATION TRY TO MAKE A WISE CRACK APPROPRIATELY AND SEE WHAT HAPPENS! I TYPE IN CAPS BECAUSE OF VISION ISSUES AND IT ALSO HELPS THOSE ON MY SUPPORT PAGES!

Nominations

Best in Show: Community or Forum Geek Health Activist Hilarious Health Activist Health Activist Hero Rookie of the Year Best in Show: Blog Best in Show: Facebook

Finalist

Best in Show: Facebook Rookie of the Year

Leslie's site goes above & beyond just getting information on MS. She also moderates and addresses issues within the site & tries to keep us on target for discussions.  — Stacy

Leslie has started an amazing MS support group which she runs. She has amazing compassion and care for her fellow MS community  — Nicole

This page offers so much support for us with MS and for those that are dealing with someone that has MS. I appreciate the fact that Leslie Hillburn opened up her heart to take on this task and allow us a place to call home.  — Lori

Very helpful group. Leslie Hillburn is an amazing creator of a an extremely inspirational group, and all the groups members are like family to me.  — Allen

They inspire so many Facebook followers to continue moving on, to stay strong, and to be faithful and hopeful through facebook posts, shares, likes, and more.  — Lauren

This GROUP & Leslie who runs it has made such a difference in raising awareness on the MonSter we call Multiple Sclerosis.  — Kelly

Leslie and the crew on our "we're not drunk we have MS" group are so supportive and helpful. it's a place to share, vent, and talk to other people out there about all the stuff going on in our lives. There are just not enough words to describe how helpful this group is.  — kitty

Leslie Hillburn gave us a place where we can just be. Having MS is difficult, but knowing that we have a supportive place to go and that we can say whatever we want and know that we will feel cared about is very special.  — Lori

Best support group EVER!  — Kelly

It's a great support group for people with MS. They give practical, medical and mental support.  — Tanya

I never feel alone, people always think with many hidden diseases that you are ok.  — Ami

This page on facebook brings together so many people on MS and we can then support each other and share our experiences and not feel so alone.  — Randie

Allowing MS people to connect and address "our" individual problems!  — Jeanie

As a person fighting Multiple Sclerosis, finding her Facebook support group has made my daily life livable!  — kelly

This is one of the most amazing people I have ever met. She has been through a lot and yet she still supports her fellow friends with MS everyday.  — Angela

Leslie does EVERYTHING to keep us informed, updated & just to listen & she is a "WARRIOR" of this MonSter as well. If it had not been for this page.... I can HONESTLY say I would not be here today. I am NOT alone & she MADE me realize this. TY Leslie!  — Kelly

I would be lost without this group...I learn new things everyday! They are there for me when I need someone who understands what Im going through!! I also like to be there for others when they need a person to help them with a question or just an ear to listen & understand them :) I would be lost without this group!! They deserve to be recognised for the loving family enviroment they have created for us to go to and be able to be ourselfs on good days & bad :) and we are never judged...Thank you!!

Why am I nominating this group? Because, they are real. We all have MS, but we love life, and giggling is definitely allowed!  — Bonnie

Leslie started this group for those of us who have MS and also those who take care of people with MS. We come here to share our ups and downs throughout the day, weeks, and months.  — Geri

I'm always told that I walk like I'm drunk and people stare all the time, this forum gave me an outlet and helped me to realize that there are a lot of us out there...  — Robin

You can go there and ask any question concern or feeling and others with MS will help you with their experiences, ideas, or support. I've learned so much about my disease and how others are also affected by reading there everyday..it's very helpful and down to earth, not like being in a doctor's office trying to ask questions.  — Marilyn

Leslie Hillburn has MS. Daily she monitors a page so others may participate in a community to share information, progress, gain support and inspire one another.  — Sue

Everyday there are words of encouragement, advice and answers to questions not only from an amazing administrator of the site but the community of this group that use the site

They have posts from people where we can learn from others suffering from MS, also laughter is the best medicine since this disease has robbed us of most everything else  — Amy

I get the best info from this group! And shared stories and some laughs.  — Pamela

This group is the most inspiring, strong, don't ever back off fighting for your own self worth and "for the love of god" I know my own my body, wait for the doctor to figure it out when we figured it out year ago group ever.  — Dana

Amazing support for fellow MS patients. This network of friends was created by Leslie Hillburn, whom has also been diagnosed with MS. If I ever have a question or concern, I post it on this wall. You have varying opinions within minutes from people living and struggling through the same disease. It is not to replace medical advice from your physician, but it is nice because you don't feel so alone with similar symptoms. She makes sure negativity stays off our page too. "Ain't nobody got time for that!!"  — Monica

Leslie, Is the best she will always finds answers to a question. She goes above and beyond to truly help everyone with MS. She makes you feel as if you are her real family. She works very hard for her group and when she takes time away for herself she truly misses everyone and worries about the group. She is a big inspiration to all. And she has a beautiful heart and soul.  — Patricia

Shows wonderful support to several thousand members! goes that extra mile to research anything you need info on.  — NANCY

For making the BEST MS Support Page on Facebook!!!  — Matt

its not just a group its more like a family!  — brandon

Leslie Hillburn started this group and is the page owner. The group is an AWESOME "family" that suffers from MS and/or their family members/caregivers. They support each other. They laugh, cry, educate and pray for each other. And always offer words of comfort to each other. THIS GROUP IS OVER 15K STRONG AND THERE IS 16K ON THE PUBLIC!  — Bonnie

Best MS support group  — David

Leslie has created this Facebook MS support page - We're Not Drunk We Have MS - where people all over the world can come together & share & learn & cry & vent. It's a page with tons of info, love, compassion & support. Leslie has turned a "page" into a loving & caring family of "MSers". She's awesome!

Leslie help many people understand their struggles dealing with MS.  — kristin

Fantastic support group for multiple sclerosis patients, families of patients and care givers of patients.

We call her Mama Leslie, She not only is the founder of our Support Group for Multiple Sclerosis ! She has started 3 Groups . One for the public , One that is a Closed Group , and One for PPMS !!! She has saved many of lives by giving us a platform where we feel safe to talk about many of Our Daily Struggles fighting this Disease !  — Tammy

If it weren't for her I would have no one to talk to when I have a flare, feeling bad or just feeling good. I am so happy that she made the site for all of us to run to each other when family doesn't understand. Thank you Mama Leslie. We love you.  — Misty

GREAT SUPPORT PAGE  — ANNA

Leslie created a safe haven for those of us with MS to go to ask questions and gain support from others who truly understand what we are going through. The We're Not Drunk, We Have MS members are my FAMILY!  — Lisa

This group has been very important to me. Having other people that have the same condition as I do that I can talk to is the best thing I could ask for.  — Deanna

She has the most informative and friendliest site That I have found bye far.  — Kandy

She created one of the most wonderful ,and supportive groups on Facebook for people with Multiple Sclerosis. She is very active,supportive,and addresses everyone's concerns. I could go on,and on,but this woman despite her own illness has given all her energy,and a great support system for thousands suffering from MS.  — Vicki

Leslie created the page that saved me. I thought I was all alone in how I felt and what I was going through until I found this group. Leslie's heart and soul is in that page, and you can tell! Love you MAMA BEAR!  — Shara

I receive a lot of helpful information and support from the members of the group. This is a very tough illness for a person to suffer through and I sadly do not physically have a family nearby to lean on. There have been times I've turned to this group for emotional support and they were there for me.  — Theresa

The website she made has nothing but support and help for someone like me who is newly diagnosed to ms. It helps make it easier to understand things and cope with this MonSter.  — Alexis

She has brought together a community of compassionate people who can share, get help or just vent about the problems with living with MS!  — Tina

When I came into this group she made me feel really welcome and we can ask any questions we wanted and we will always get a responds.Leslie is someone we can talk to even if we have a personal problem we can go to her.She is a caring person who im glad to know.  — Sherry

They are very supportive and offer useful information for both people with MS and their families.  — melissa

Best Support Group I have ever been a part of.  — ken

THIS IS THE BEST MULTIPLE SCLEROSIS SUPPORT PAGE EVER! LESLIE HILLBURN HAS CREATED A COMMUNITY THAT PROVIDES CARING, LOVE AND SUPPORT, IN ADDITION TO MEDICAL INFORMATION AND OTHER HELPFUL LINKS. THIS PAGE PULLED ME OUT OF A VERY DARK PLACE AND I COULD NOT BE MORE GRATEFUL TO HAVE FOUND THIS NEW "FAMILY" OF SUPPORTERS! WE'RE NOT DRUNK ROCKS!  — Cheri

THERE IS ALWAYS SOMEONE THERE. YOU ARE NEVER ALONE, AND FOR THAT I AM FOREVER GRATEFUL TO MAMA BEAR LESLIE!  — Shara

I have been diagnosed with the disease MS since 2006. I have yet to find a more knowledgeable and understanding group. I have been able to receive much needed advice on issues as well as receiving that feeling of being useful once again with the small chances that this group has given to me.  — Josh

This page is a great resource for people with MS. It allows you to discuss your MS issues, ask others if they have had the same experiences, and its a great way to make new friends. The people are great, you basically talk about anything, and the moderators are great. I belonged to many MS support groups in the past but this one is the best!  — Maryrose

The support I receive from the group is awesome!!  — LuAnn

I have M.S. This page helps me and my family everyday to stay abreast of news, to encourage us, and to help us encourage others living with M.S. We are now well over 15,000 members strong. We also have our 2d annual "Family Reunion" planned where members meet face to face and lasting friendships are formed.  — Ren

I have MS and enjoy the community feel of this site. And I like the support of others  — Lynn

Leslie Hillburn formed this multiple sclerosis support page on facebook in 2013. Since then, membership has grown to over 20,000 and the page has gone 501c3 and helped countless numbers of people who suffer from this debilitating disease! Her tireless energy in running this page is an inspiration to us all!  — Cheri

Leslie is a "Lifesaver" literally. With over 22, 000 followers she is the glue that tirelessly keeps us all together. If someone is troubled or suicidal she finds a way to get them help immediately. She throws a reunion every year in different locations so we can meet each other in person. I swear she is there for us 24/7. Best Group Ever!  — Laura

Leslie started this MS support page in 2013 and, to spite the fact that she has MS herself, works tirelessly to support people with this disease! This support page has grown from 1100 members to over 22,000 in just four years and boasts a yearly "Family Reunion" held in a different state every year! The love and support she provides are endless!  — Cheri

This is the best support group for MS that I have found. It has a large following. Is thoughtfully and consistently administered. One can access information, find support and friendship. I have seen many acts of kindness that occur on this page for real. Abuse and disputes are addressed immediately. Responses are timely and personal. Love this site

Fantastic site where people with MS exchange ideas and help support each other  — Melissa

Leslie & her crew manage to keep 15 or 16k+ of varying personalities feeling like family. MS can be deeply depressing and I believe by providing this forum for info and support, Leslie has saved many lives. Suicide is the #1 killer for those w/MS. I have made friends in my city through this group. We have become each other's local lifelines. <3  — valerie

Leslie

You Might Also Like

Sabrina Cannella

Best In Show: Instagram Nominee

Patient Leader Hero Nominee

Alyssa Silva

Best Kept Secret Nominee

Sharon Rose Nissley, Klippel-Feil Syndrome Freedom

Health Activist Hero Nominee

Advocating for Another Nominee

Candice

Health Activist Hero Nominee

Adam Stevens

Hilarious Health Activist Nominee

Heather

Advocating for Another Nominee

Silver Stethoscope Nominee

International Pain Foundation

Best in Show: Community or Forum Nominee

Best Team Performance Nominee

Judith

Best Kept Secret Nominee

Best Kept Secret Nominee

Elyse

Best in Show: YouTube Nominee

Best Kept Secret Nominee

Melissa (13 Going on Crazy)

Best in Show: Blog Nominee

Advocating for Another Nominee

Janie A. Bowthorpe

Health Activist Hero Nominee

Best Kept Secret Nominee

Committee

Best Team Performance Nominee

Fuseboo

Best in Show: Twitter Nominee

Best Kept Secret Nominee

@StorkBrian

Best in Show: Twitter Nominee

Best in Show: Twitter Nominee

Chris Sandel @ 7 Health

Geek Health Activist Nominee

Health Activist Hero Nominee

Yvonne Desousa

Hilarious Health Activist Nominee

Hilarious Patient Leader Nominee

Michael

Health Activist Hero Nominee

Annie Appleseed

Best in Show: Facebook Nominee

Best in Show: Facebook Nominee

Brigitte

Best in Show: Blog Nominee

Maria Gjerpe

Health Activist Hero Nominee

Sam Watson

Best in Show: Blog Nominee

Best in Show: Blog Nominee

Georgina

Best Kept Secret Nominee

Rocking2stomas

Rookie of The Year Nominee

Best Kept Secret Nominee

Sita Gaia

Advocating for Another Nominee

Health Activist Hero Nominee

Julian Phillips MBA

Best in Show: Facebook Nominee

Kimberly Morgan Bossley

Health Activist Hero Nominee

Best in Show: Twitter Nominee

Janssen Pharmaceuticals

Healthcare Collaborator: Company Nominee

Best Team Performance Nominee

Shaw Mind Foundation

Rookie of the Year Nominee

Chris Gascoigne

Best in Show: Facebook Nominee

FIBROMYALGIA SUPPORT AUSTRALIA

Best in Show: Facebook Nominee

Best in Show: Facebook Nominee

Dr. Kemia

Health Activist Hero Nominee

Health Activist Hero Nominee

PBC Foundation

Best Team Performance Nominee

Cyndy

Health Activist Hero Nominee

Best in Show: Twitter Nominee

Sleepy American

Health Activist Hero Nominee

Best Kept Secret Nominee

Stephanie Zimmerman

Best Kept Secret Nominee

Advocating for Another Nominee

Fabio Gratton

Healthcare Collaborator: Company Nominee

Nancy

Health Activist Hero Nominee

Best in Show: Community or Forum Nominee

SharonRainey

Health Activist Hero Nominee

Sandy

Health Activist Hero Nominee

My Body Assistant

Health Activist Hero Nominee

Martine

Best Kept Secret Nominee

Health Activist Hero Nominee

Atrium Wellness Massage

Best Kept Secret Nominee

Isabel Rivera

Health Activist Hero Nominee

Best in Show: Blog Nominee

Rare Candace

Health Activist Hero Nominee

Advocating for Another Nominee

HannaH (@lymewithjoy)

Best in Show: Instagram Nominee

Best In Show: Instagram Nominee

ThailaSkye

Rookie of the Year Nominee

Best in Show: Blog Nominee

www.realfitnessandhealth.co.uk

Best Kept Secret Nominee

Joseph Potocny

Best Kept Secret Nominee

Priyanka

Rookie of the Year Nominee

Health Activist Hero Nominee

DiabeticDanica

Best in Show: Youtube Nominee

Joshua

Geek Health Activist Nominee

Liz McCallum - Founder: Big Beautiful Wellness

Best in Show: Facebook Nominee

Best in Show: Facebook Nominee

Semper Sarah

Health Activist Hero Nominee

Patient Leader Hero Nominee

TheSteeleProject

Health Activist Hero Nominee

Best Kept Secret Nominee

SFC(R) Keith A. Collins

Best Kept Secret Nominee

Advocating for Another Nominee

Mari

Best in Show: Facebook Nominee

Michael

Best Kept Secret Nominee

Nichole Klute Rushton

Best Kept Secret Nominee

Hilarious Patient Leader Nominee

Dawn Gonzalez

Best in Show: Facebook Nominee

Health Activist Hero Nominee

Jen Vargas

Best in Show: Twitter Nominee

Advocating For Another Nominee

Traci Lynn

Hilarious Health Activist Nominee

Best in Show: Twitter Nominee

Fearless Chica

Best Kept Secret Nominee

Best Kept Secret Nominee

Star Simmons/President & Founder of Sickle Cell Foundation of Orange County

Health Activist Hero Nominee

Hilarious Health Activist Nominee

Nancy

Best Kept Secret Nominee

Health Activist Hero Nominee