I'm an educator. Once diagnosed it was vital to learn as much about the disease, what I could do to maintain optimal health, and how I could help educate others with a similar condition. For 17 years I facilitated in-person support groups for the Muscular Dystrophy Association. Then as Outreach Director for the Myotonic Dystrophy Foundation I created a network of support groups across the US, Canada, and Europe and trained patients and caregivers to serve as support group facilitators. In the past 3 years I've produced a podcast series, Glass Half Full. Podcast episodes focus on positivity -- how people with chronic health condition and/or disability, and caregivers, can live the best life possible. I continue my social media learning with a YouTube channel, Facebook group, and Twitter and Instagram accounts.
Leslie is exceptionally inspirational and her willingness and determination to pursue chronic illness and the people that are living proof that you can still have a vital an active life and you can share your knowledge to help those that are just starting to be put into our world they knew very little of, and seeks to advance knowledge — Melissa
I’m a Patient Leader