Patient Leader

Hi, I'm Rachel and I am 30 years old and have been ill for 9 years with a rare condition called Pure Autonomic Failure where my bladder and bowel have failed and I continue to be admitted monthly for recurrent sepsis. I have 2 stoma bags: an Ileostomy and a Urostomy and complications My blog is an honest account of living with 2 stoma's and particularly a Urostomy because atm I am the only blogger. I'm a passionate advocate in raising ostomy awareness and promoting body confidence. I have had my hardships but now with 2 stoma bags in tow, I am not only surviving but thriving. I am part of "The IBD & Ostomy Support Show" on YouTube that is live 8 pm UK time with 4 other bloggers.


Bournemouth, ENG


Advocating For Another Rookie of The Year Best Kept Secret

Rachel is a breath of fresh air with her blatant honesty around her health issues. She shows such determination and strength with advocacy and raising awareness for urostomates. I am truly priviledged to know her.  — Stephie

Rachel despite having a terminal diagnosis is fighting for awareness of urostomies and people who have to wear two bags we call ourselves Double Baggers! She blogs, support and advocates for us!  — Louise

Rachel has created a platform for raising vital awareness about urostomies and her rare condition. Her posts are incredibly helpful and informative. She is very personable and is so positive about her situation. I find her inspirational. Shell  — Shelley

Rachel has a terminal diagnosis she is in and out of hospital nearly every month. Yet she spends all her time and energy raising awareness for people who have Urostomies and 2 Ostomy bags. Her aim is to make people aware not all Ostomy bags are for people who have bowel issues. Also her aI'm is for people to have better body images with Ostomy bags  — Louise


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