Amy

Patient Leader

Staying Alive with Scleroderma is the Facebook Page that Amy Gietzen established about 7 years ago. Amy has used Social media to share her personal, heartfelt story of her battle with a Rare Chronic Terminal Auto Immune disease to inspire, educate and Support others living with the same illness. Amy's unique, quirky, and hilarious tales of her day to day life have really captured the hearts of all of her Facebook followers. The past year she has made strides to advocate more aggressively by having articles published in "The Mighty" and on the Scleroderma Foundation website and "Inspire". Amy shows her follows that they are not alone and being sick doesn't define who you are!

Location

West Seneca, NY

Past Awards Participation

Sixth Annual WEGO Health Awards

Nominations

Advocating For Another Best in Show: Facebook Lifetime Achievement Best in Show: Twitter
Amy

You Might Also Like

Kathy

Hilarious Health Activist Nominee

Best in Show: Podcast Nominee

RenzaS

Best in Show: Blog Nominee

Health Activist Hero Nominee

Stephen Shaul

Best in Show: Blog Nominee

My Odd Sock

Hilarious Health Activist Nominee

Hilarious Health Activist Nominee

JCCSG

Health Activist Hero Nominee

Health Activist Hero Nominee

Laura Kolaczkowski

Patient Leader Hero Nominee

Lifetime Achievement Nominee

Add Your Nomination