Patient Leader

Staying Alive with Scleroderma is the Facebook Page that Amy Gietzen established about 7 years ago. Amy has used Social media to share her personal, heartfelt story of her battle with a Rare Chronic Terminal Auto Immune disease to inspire, educate and Support others living with the same illness. Amy's unique, quirky, and hilarious tales of her day to day life have really captured the hearts of all of her Facebook followers. The past year she has made strides to advocate more aggressively by having articles published in "The Mighty" and on the Scleroderma Foundation website and "Inspire". Amy shows her follows that they are not alone and being sick doesn't define who you are!


West Seneca, NY


Patient Leader Hero

Past Awards Participation

Sixth Annual WEGO Health Awards


Advocating For Another Best in Show: Facebook Lifetime Achievement Best in Show: Twitter

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