I’m a survivor called Shawnstestimony! I’m also known to my family and friends as just Shawn. I have been living with sicklecell disease since birth and dealing with complications from this illness has grown me into a Soldier and a Fighter! I became an advocate because of my children. I couldn’t bear them dealing with the same feelings that I had at the hands of medical professionals and care workers. The feeling of being nothing and unimportant and I’m not good enough because of an illness that you were born with is crazy but it is our reality. This is why I Advocate so hard and nonstop and I will continue to do so until my last breath.
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I’m a Patient Leader