Kerry Wong

Patient Leader

I've been living the chronic life for nearly 10 years, with Fibromyalgia, Sarcoidosis, IBS, & more. I aim to show others who are suffering that they are not alone, and educate those who care but don't understand how to be there for us in the ways we really need them to through my blog, Float Like a Buttahfly. I've fallen in love with advocacy, and do that as much as possible, whether by social media, phone, email, or in person at my legislators' offices. I also help plan awareness events, recruit & train advocates, and I'm hoping to start a support group and Walk near me. I've been a Patient Advocate w/ ACR, Patient Ambassador w/ FSR, Platinum Ambassador w/ AF, & Representative for IFAA.

Location

Mamaroneck, NY

Nominations

Patient Leader Hero
Kerry Wong

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