Kerry Wong

Patient Leader

I've been living the chronic life for 10 years, with arthritis, fibromyalgia, sarcoidosis, IBS, & more. I aim to show others who are suffering that they are not alone, and to educate those who care but don't understand how to be there for us in the ways we really need them to through my blog, Float Like a Buttahfly. I've fallen in love with advocacy, and do that as much as possible, whether by social media, phone, email, or in person at my legislators' offices. I also help plan awareness events, and recruit & train newer advocates. This year, I hosted the first sarcoidosis event in my area (an accessible/inclusive "walk 'n' roll"), and I'm working to start a support group in the fall.


Mamaroneck, NY


Patient Leader Hero Best in Show: Twitter

Kerry Wong has a complicated medical history. She was recently diagnosed with Sarcoidosis. For years, she has volunteered in the arthritis world for the Arthritis Foundation and the IFAA. She advocates for the AF and started the first ever Sarcoidosis Walk in her hometown. Kerry is a dedicated advocate and is truly a Health Hero  — Kelly

Past Awards Participation

Sixth Annual WEGO Health Awards


Patient Leader Hero
Kerry Wong
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