Simon R. Stones

Patient Leader

Simon is an award-winning patient advocate, speaker, consultant and researcher, who was the winner of the international WEGO Health Award for Patient Healthcare Collaborator in 2017. Simon was diagnosed with arthritis, inflammatory bowel disease and fibromyalgia during his childhood, and also cares for his mother who has a significant amount of chronic health conditions. Together, these experiences have stimulated Simon’s interest in healthcare, driving him to improve the health and wellbeing of people with chronic health conditions. He is currently a PhD Candidate at the University of Leeds, where he is developing a framework to improve the supported self-management of arthritis by children and their families. Simon is also an active patient research partner on various national and international research projects and initiatives and is a board member of four associations: the European Network of Arthritis in Children (ENCA), the European Network of Fibromyalgia Associations (ENFA, of which he is President), Fibromyalgia Action UK and RAiISE – Invisible illnesses in schools and education.


Bolton, ENG


Best in Show: Twitter Lifetime Achievement Patient Leader Hero Healthcare Collaborator: Patient


Healthcare Collaborator: Patient

Simon is passionate about healthcare and helping patients. His Twitter account gives insight to his voluntary work and PhD into self management for chronically ill children, as well as opens interesting discussions about current events in health and research. He also connects hundreds of people and groups internationally through his online network.  — Sophie

Simon is taking his own personal life's challenges and turning them around to be used for good and for the advancement and support of others.  — Louise

Simon work's tirelessly in the name of patient, health & research advocacy, attending conferenferes & meetings across the globe. Recently he was made President of ENFA The European Network of Fibromyalgia Associations, he is true inspiration as he cares for his sick mum at the same time as looking after his own chronic conditons & working a job.  — Carole Sian

Simon spreads the word and encourages young people especially to manage their Arthritis. He is an excellent role model.  — Anne

Simon R. Stones

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