Patient Leader

I'm a lot of things- a teacher, a programmer, a mum, an Ehlers Danlos "sufferer", a wheelchair user, a moderately deaf person, a ranty angry woman (not always!). But what I am is more mentally healthy having discovered the joys of blogging I've been blogging since long before my official diagnosis about health, family, & life in general. My blog has created a window for me to the world through either posts that let me release my frustrations into the ether, or those where I've been able to write and help other people going through a diagnosis of a rare condition. Sometimes they're hard going, often they're a tongue in cheek look at what life is really like as I quite literally fall apart!

Past Awards Participation

Fifth Annual Health Activist Awards


Hilarious Health Activist

Sixth Annual WEGO Health Awards


Best Kept Secret

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