I've lived with Vascular Ehlers-Danlos Syndrome and POTS nearly all my life but was only diagnosed at 35 years old following a severe decline which landed me in a wheelchair. I've struggled over the years with these syndromes and with each time was a further loss of abilities. In 8 years practicing as a Registered Nurse, I struggled to thrive whilst my disease processes fulminated, undiagnosed and untreated. Through intensive research on my own case and an injury disabling me from practicing as a nurse, my own self-advocacy led me to diagnosis and now my goal is to raise disease awareness and help others struggling within the medical system for proper diagnosis and treatment.
Best in Show: Blog Nominee
I’m a Patient Leader