The truth is I never intended to be here, I've rather landed up in this world with a bump. After caring for Molly who had been very poorly for 14 years She was finally diagnosed. I was in a way relieved as i thought this would now be her chance to live a normal healthy life. How wrong i was, Molly had been walking around with a life threatening condition for 14 years. She has a pituitary disorder, the life threatening part being adrenal insufficiency. The world i have come to inhabit is one of non diagnosis, poor awareness, medication which has not changed in 50 years and very little research & understanding. People are unnecessarily dying from this from this its 2016 I have to change that.
I’m a Patient Leader