Life Takes Guts - @reneesfight

Patient Leader

Since being diagnosed with Gastroparesis caused by Ehlers Danlos Syndrome and Dysautonomia, I have gone into Gastrointestinal Failure and now rely on a surgical feeding and drainage tube, and a central line going to my heart to deliver Total Parenteral Nutrition and fluids daily. So this is my life. It is different, it is scary, but I am here. I felt so alone until I met some amazing people online who are going through the same thing as me! I realised that nobody around me had heard of my condition, so I spoke up to educate. Even some doctors were clueless. Here I am, advocating for myself and others, sharing the ups and downs, and showing that you can still LIVE despite being cureless

Past Awards Participation

Fifth Annual Health Activist Awards


Health Activist Hero


Best in Show: Instagram

Sixth Annual WEGO Health Awards


Best In Show: Instagram
Life Takes Guts - @reneesfight

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