Life Takes Guts - @reneesfight

Patient Leader

Since being diagnosed with Gastroparesis caused by Ehlers Danlos Syndrome and Dysautonomia, I have gone into Gastrointestinal Failure and now rely on a surgical feeding and drainage tube, and a central line going to my heart to deliver Total Parenteral Nutrition and fluids daily. So this is my life. It is different, it is scary, but I am here. I felt so alone until I met some amazing people online who are going through the same thing as me! I realised that nobody around me had heard of my condition, so I spoke up to educate. Even some doctors were clueless. Here I am, advocating for myself and others, sharing the ups and downs, and showing that you can still LIVE despite being cureless

Past Awards Participation

Fifth Annual Health Activist Awards

Nominations

Health Activist Hero

Winner

Best in Show: Instagram
Life Takes Guts - @reneesfight

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International Foundation for Functional Gastrointestinal Disorders (IFFGD)

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