Debbie @ ChronicallyGratefulDebla.com

Patient Leader

I am a patient as well as patient leader and advocate for Osteoarthritis - Avascular Necrosis - Osteonecrosis. - Spondylolisthesis I also am a CureClick Ambassador, AF rep ,and a member of WEGOHealth. After Being diagnosed in 2014 with AVN life set me on a different path other than being an optometric tech and apprentice optician. I had to hang my white lab coat up in the eye care industry a lot sooner than i would have liked, that was very hard for me as I loved seeing patients , helping them. But having Osteonecrosis in knee from injury and Osteoarthritis in both knees as well as Arthritis in back and Spondylolisthesis in my L5S1 , Hashimoto, Hypothyroidism and Adrenal fatigue I set out on a new path. That new path was becoming a group founder of The support group Avascular Necrosis / Osteonecrosis Support Int'l on FB. As well as advocate for those with avn,, bone pain, chronic pain and inflammation I found many patients could not find doctors knowledgeable in this rare disease, so i set out to call doctors in every state to see what orthos were experienced in avn and also thought out of the box as far as treatments vs just waiting until a patients bones collapsed and then giving them a joint replacement .. I am working on a world wide directory as well. I also wrote a booklet on osteonecrosis that I give out to our group members they can read it and try to understand what avascular necrosis is, locate forms of treatment and share with their family and doctor so that they can better understand what we deal with day to day. I also give these booklets out at health fairs etc. I love research -history- medical information and new technology- I also love to study the bible- and I love real estate I also for over 30+ years have advocated for victims of domestic violence.. I also have gone back to school to study real estate

Location

Poland, OH

She is loved and respected by thousands. She brought a rare disease like Osteonecrosis into the spot light. Helping thousands suffering who lost hope. She made a ribbon that's used by thousands whs disease is so rare we didn't have one. She does so much not enough room here but she blogs, campaigns,YouTube and more she spoke to media etc  — Dee

I have been a member of her group and now reading her blog and all she does to raise awareness for avascular necrosis aka osteonecrosis. She has really been a force that has kept up to date on the various treatments ,she created awareness ribbon for the disease. She is doing great things through her awareness  — Valerie

Deb blogs, advocates, admins a FB group and continues to educate about bone disease in our community.She is also active on Twitter and FB. Instagram As well as sharing her own story she is passionate about raising awareness for Avascular Necrosis and bone diseases. She has brought many things to the community and now an author of an avn book.  — Janice

I came across her via her blog. As I to have avn. I noticed it also isn't in your list to choose from . It's rare but the community is growing. Deb educates , posts clinical trials, links to various sites . She's committed.  — Janice

Well she provides great info and after getting to know her I just gained more respect for her. She is an amazing advocate The liknks I have for her for fb just aren’t loading on your site https://m.facebook.com/AvascularNecrosisAndBoneDiseaseAwareness/ https://avascularnecrosiseducation.com/author/chronicallygratefuldebla/  — Lisa

The work and dedication she puts into her advocacy is above and beyond  — Thomas

She strives to provide vital information to those of us suffering with Avascular Necrosis- she wrote a pamphlet that helped my family understand what I was dealing with. She is making Avascular Necrosis known. She is a real inspiration while dealing with her own health issues and bone problems  — Tina

Debbie is a compassionate and dedicated warrior and professional! She goes above and beyond not only because she can offer us insight due to the fact that she is a patient herself, but because she does research and collaborates with professionals. We can trust her to always deliver the correct information with a kind heart.  — ronni

Debbie @ ChronicallyGratefulDebla.com

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