I am the proud mom of two strong loving boys, who suffer with CAIDS. I am also the President/Founder of StopCAIDnow. My son Brody, was born with a rare & genetic disease called Atypical Blau, (which has no known prognosis) and my oldest Aidan, has EDS type 3. Instead of focusing on the diseases, I focused on the mechanism. I knew, if we could shut off the bad inflammation in their diseases, then we could help so many suffering with CAIDs. Stopcaidnow partnered with the Cleveland Clinic to dev. a CME on CAIDS, so more Dr's would be able to properly dx and provide the right treatment. Our ultimate goal, is to bring home the CURE. The hardest thing to hear is," mommy make the pain stop".
I’m a Patient Leader