Patient Leader

My advocacy efforts spur from my own personal experiences as a patient with Ehlers-Danlos Syndrome, Chiari, MCAS, Dysautonomia, Hypokalemic Periodic Paralysis, CRPS, POTS, and several other rare & chronic illnesses. While serving as Miss Frostburg, I use my educational platform, "But You Don't Look Sick" - Making Invisible Illnesses Visible, to raise awareness about invisible illnesses. I have shared my story (translated into 8 languages) with the world - most knowing me as the beauty queen with a 25" scar down my spine. After 10 brain and spinal neurosurgeries (due to EDS) I am a living example of how to live beyond your illness and beyond any obstacle that life throws your way!


Manchester, MD

Past Awards Participation

Fifth Annual Health Activist Awards


Best in Show: Instagram

Sixth Annual WEGO Health Awards


Advocating For Another Best in Show: Facebook Healthcare Collaborator: Patient Best In Show: Instagram

You Might Also Like

Sickboy Podcast

Best in Show: Podcast Nominee

Susan B

Best in Show: Blog Nominee