Chronic Life has visited our family x4. My 7 yr old daughter developed Juvenile Arthritis overnight (Spondyloarthropathy, a spinal form of autoimmune arthritis), and my source of info was a dusty volume at the back of our library -- with an anecdotal paragraph on Juvenile Arthritis. Today we have info at our fingertips, and learn from each other! Years later my son was diagnosed with Crohn’s Disease and Cardiomopathy (heart failure), I have Rheumatoid Arthritis, and recently both sons were diagnosed with Ehlers Danlos. I find strength in connecting with fellow patients who need an ear, and sharing health news. I blog and tweet laughter, creativity & fresh air as coping mechanisms.
Jody's wit, determination, and encouragement (among other amazing qualities) add so much to the online chronic illness community. I don't remember what advocacy life was like before knowing this warrior!
I’m a Patient Leader