Heather is a visual storyteller, artist, and patient advocate. She has lived with multiple complex chronic illnesses since childhood including systemic JIA/Still's Disease, dermamyositis, spondylitis, CVID, endometriosis, migraines, gastroparesis & more. Heather shares unapologetic "selfies" & other images featuring her using her mobility aids & engaging in everyday activities relating to caring for her chronic illnesses in an effort to normalize the experience of being chronically ill and disabled as a younger person and challenge common misconceptions about disability and chronic illness. She hopes that by sharing her own story she can help others feel less isolated!
One glance at Heather's Instagram feed and you will recognize the strength, contentment, and passion she exudes. Thank you for being authentic, Heather. You are a wonderful friend and advocate. — Kenzie
I’m a Patient Leader