Heather is a visual storyteller, artist, and patient advocate. She has lived with multiple complex chronic illnesses since childhood including systemic JIA/Still's Disease, dermamyositis, spondylitis, CVID, endometriosis, migraines, gastroparesis & more. Heather shares unapologetic "selfies" & other images featuring her using her mobility aids & engaging in everyday activities relating to caring for her chronic illnesses in an effort to normalize the experience of being chronically ill and disabled as a younger person and challenge common misconceptions about disability and chronic illness. She hopes that by sharing her own story she can help others feel less isolated!
I've known Heather 5+ yrs now & still to this day stop dead in my tracks when I see a post or story from her; particularly on IG where she chronicles her daily life, kitties, marriage, painting, collection of pins, & her chronic pain, rare dx's, etc. Her photo advocacy "lifts the veil" for MANY to see the reality of chronic, progressive diseases. — Rhonda
I’m a Patient Leader