Alice Wong

Patient Leader

There is such diversity and complexity in the disability community. Our stories need to be told. Our history needs to be recorded and shared. In 2014, I created the Disability Visibility Project™, a community partnership with StoryCorps and an online community dedicated to recording, amplifying, and sharing disability stories and culture. I host Twitter chats, curate and share posts in our Facebook group, and encourage disabled people to tell their stories in their own terms at StoryCorps, a national oral history organization, or using social media. DVP believes that storytelling is a radical act and that there is no single disability narrative.

Nominations

Best in Show: Community or Forum Patient Leader Hero

The Disability Visibility Project, run by Alice Wong, comprises Facebook, Twitter and website presence, making disability more visible in the media. The Facebook group showcases articles about disability, and she encourages discussing. Alice and her team run engaging twitter chats and protests. All content is accessible.

Alice is the Founder of Disability Visibility Project (DVP)™ - an online community dedicated to recording & sharing disability stories. She has been featured on NBC News. The New York Times just published her article about Medicaid. She met Pres Obama when she won AADP Paul G. Hearne Leadership Award. She is active on Twitter-see #cripthevote.  — Jessica

Alice Wong

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