Ronny Allan

Patient Leader

Ronny Allan was diagnosed with incurable Metastatic Neuroendocrine Cancer in July 2010 after presenting with weight loss, symptoms of iron deficiency and facial flushing (Carcinoid Syndrome). He is an internationally known advocate for Neuroendocrine Cancer using his 'Patients Included' accredited blog site to spread awareness about this unusual, less common and complex disease. Ronny wants to inspire his community by putting a positive spin on life whilst retaining an element of both sympathy and empathy. He is very passionate about moving Neuroendocrine Cancer into mainstream knowledge circles by finding brand new audiences.

Nominations

Best Kept Secret Patient Leader Hero Best in Show: Community Best in Show: Facebook

Finalist

Best in Show: Blog

Ronny is tireless advocate for patients with neuroendrocrine tumours. A much misunderstood and rarely acknowledged cancer. He provides good, well researched information and despite battling the disease himself, he finds the time to answer messages and posts personally. His advice and all the information he posts has been invaluable  — Jenny

Ronny's blog is a lifeline for patients struggling to negotiate their diagnosis and all the medical and emotional complications that come with it. Ronny's blogs are informative, relevant and genuinely helpful for NET patients who rely on him to help them understand their disease and how it's treated.  — Jenny

Ronny has a incredible knowledge about NET cancer which he altruistic share with patients all over the World. He keeps the tone positive and makes a huge difference for his co-patients. I would not have the knowledge about my diagnoses without Ronny. Thank you Ronny!

Ronny has fostered a community where patients and caregivers around the relatively rare NET cancer Can Connect and share concerns and the questions we have on all the aspects of our diagnosis. It makes a huge difference for us!  — Ann

Ronny is a true hero- takes his co-patients serious and shares his knowledge to help others- World wide! With all aspects related to our diagnosis  — Ann

Ronny has provided invaluable information worldwide for what was once a rare disease, neuroendocrine tumors. In past years & currently, many patients have been misdiagnosed by lack of knowledge by docs. He helps us deal with alll aspects of possibilities & is instrumental in getting knowledge to docs. His value is beyond praise.

Ronny has created a blog with important information concerning neuroendocrine tumors. Much iof the info he has researched and amassed was not available to all NET patients world wide. He also started a site where any and all patients vpcan communicate with him and with each other. NETs are different for all patients so sharing info is IMPORTANT.

Ronny knows and shares everything about our ‘rare’ cancer... he informs and keeps the hope High in a informed and relevant way. He covers all aspects of bring incurable sick and it supports patients World wide. He does with an altruistic heart! Thank you Ronny !  — Ann

Ronny is on a relentless pursuit to demystify NET and make the information available to all. Even though he is in England, he has now worldwide reach with his support group. Last year when I found his blog, it has changed my life. He spends countless hours helping others, one at a time. I have firsthand knowledge as I volunteer to help him.  — Patricia

Ronny has significantly raised the level of awareness and understanding of this rare form of cancer (NET). He has brought comfort and support to thousands of sufferers and their families and has built up a large and international following.  — Brian

Ronny takes the time to research, arm himself with the latest, most up-to-date information and then disseminate in a thoughtful, responsible and reflective way, with well argued and balanced rationale. He's not afraid to shake things up when needed, but is mainly just a steady voice of reason in what can be the turbulent medium of social media.  — Rupert

Ronny's a great patient hero, he attends congresses and researches rigorously to stay up to date with latest clinical developments which he then takes time and trouble to explain clearly to a lay audience; he also writes about holistic approaches and ways to help patient cope, he's super-connected across social media and is a delight to work with  — Rupert

Ronny is a tireless advocate for NET sufferers, and an invaluable resource for information on this cancer. His knowledge of the various conditions, their treatments and side effects surpasses any other resource I have found so far.  — Peter

I was diagnosed with this cancer more than a year ago, and when I originally found his other page, he connected me to his blog as well. These two pages have given me more clarity, information, a personal feeling of not being alone as well as support... all on levels I have found no where else!!! There are no words to explain how thankful I am!!

Ronny has built a worldwide community, educating each and every member who then can have access to others with similar situations, or even different ones. His blog is so well rounded, including clinical trials, results of tests, keeping us posted on new things on the scene and so much more. He is a great cheerleader and is so kind.  — Marilyn

Ronny has provided invaluable help and information to those of us, throughot the world, who have been diagnosed with once was concidered a rare ‘cancer’ Neuroendocrine Tumors. This illness is like no other in that everone affected has different sypmtoms and results. He has researched many or all of the emerging treatments giving us hope.

I am a new patient who had never heard of this cancer. I found Ronny Allen when I googled this disease and if it wasn't for him I would be totally clueless. I have learned so much important information from this selfless person. I really do call him my hero to my family and friends!

As an admin on his group, I am a witness to the time and effort he spends on keeping up to date and pertinent information. He spends so much time one on one to help newly diagnosed patients, responding to posts, validating information. It is more than a full time workload for him. The key to his success, it is from the patient’s point of view.

Ronny works tirelessly to provide information about Neuroendocrine cancer, it's symptoms,side effects,treatment options,specialist health care centres,consultants &links. His community provides invaluable support to patients and their families,carers and friends. He always answers comments & questions personally and promptly. His work is incredib  — Jane

Past Awards Participation

Fifth Annual Health Activist Awards

Nominations

Best in Show: Facebook Health Activist Hero Rookie of the Year Best in Show: Twitter

Finalist

Best in Show: Blog

Winner

Best in Show: Community or Forum

Sixth Annual WEGO Health Awards

Finalist

Best in Show: Blog Patient Leader Hero Lifetime Achievement
Ronny Allan

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