Thomas Exler

Patient Leader

I was born with bladder exstrophy, and I have had the opportunity to speak all over the US and around the World.. Bladder exstrophy is a birth defect, causing the cloacal membrane to fail to close, leaving the bladder outside of the abdominal wall, and grew up with a urostomy. I am currently, Founder and Chairperson of Courage to Shine™, and the Vice President of the Association for the Bladder Exstrophy Community, board member of Jamie’s Dream Team, and board member of the Pittsburgh Ostomy Association. In the past I founder of the United Ostomy Association Young Adult Network, and was a UOA Youth Rally counselor for 12 years.

Location

PITTSBURGH, PA

He was born with bladder exstrophy, and grew up with a urostomy, and he has gone around the World to speak. He is the founder of Courage to Shine, and VP of the Association for the Bladder Exstrophy Community, a board member of Jamie’s Dream Team and the board member of Pittsburgh Ostomy Association.  — Kathii

He was born with bladder exstrophy, and grew up with a urostomy, and he has gone around the world to speak. He is the founder of Courage to Shine, and VP of the Association for the Bladder Exstrophy Community, a board member of Jamie’s Dream Team and the board member of Pittsburgh Ostomy Association.

He was born with bladder exstrophy, and grew up with a urostomy, and he has gone around the World to speak. He is the founder of Courage to Shine, and VP of the Association for the Bladder Exstrophy Community, a board member of Jamie’s Dream Team and the board member of Pittsburgh Ostomy Association.

He was born with bladder exstrophy, and grew up with a urostomy, and he has gone around the World to speak. He is the founder of Courage to Shine, and VP of the Association for the Bladder Exstrophy Community, a board member of Jamie’s Dream Team and the board member of Pittsburgh Ostomy Association..

Thomas Exler

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