Thomas Exler

Patient Leader

I was born with bladder exstrophy, and I have had the opportunity to speak all over the US and around the World.. Bladder exstrophy is a birth defect, causing the cloacal membrane to fail to close, leaving the bladder outside of the abdominal wall, and grew up with a urostomy. I am currently, Founder and Chairperson of Courage to Shine™, and the Vice President of the Association for the Bladder Exstrophy Community, board member of Jamie’s Dream Team, and board member of the Pittsburgh Ostomy Association. In the past I founder of the United Ostomy Association Young Adult Network, and was a UOA Youth Rally counselor for 12 years.

Location

PITTSBURGH, PA

Past Awards Participation

Fifth Annual Health Activist Awards

Nominations

Best Kept Secret Best in Show: Blog Best in Show: Facebook Health Activist Hero Lifetime Achievement Best in Show: Twitter Best in Show: Youtube

Sixth Annual WEGO Health Awards

Nominations

Patient Leader Hero
Thomas Exler

You Might Also Like

Athena Moberg, CFTP

Best in Show: Youtube Nominee

Best Team Performance Nominee

Stoma in a teacup

Rookie of the Year Nominee

Health Activist Hero Nominee

Blue Bear Aware

Best Kept Secret Nominee

Medicine X

Best Team Performance Nominee

Best Team Performance Nominee

Michael Luscombe

Best Team Performance Nominee

ilene corina

Best in Show: Blog Nominee

Lifetime Achievement Nominee