Thomas Exler

Patient Leader

I was born with bladder exstrophy, and I have had the opportunity to speak all over the US and around the World.. Bladder exstrophy is a birth defect, causing the cloacal membrane to fail to close, leaving the bladder outside of the abdominal wall, and grew up with a urostomy. I am currently, Founder and Chairperson of Courage to Shine™, and the Vice President of the Association for the Bladder Exstrophy Community, board member of Jamie’s Dream Team, and board member of the Pittsburgh Ostomy Association. In the past I founder of the United Ostomy Association Young Adult Network, and was a UOA Youth Rally counselor for 12 years.



Past Awards Participation

Fifth Annual Health Activist Awards


Best Kept Secret Best in Show: Blog Best in Show: Facebook Health Activist Hero Lifetime Achievement Best in Show: Twitter Best in Show: Youtube

Sixth Annual WEGO Health Awards


Patient Leader Hero
Thomas Exler

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