Patient Leader

I've been a member of the autoimmune world for the past 17 years, and while it has had its share of difficulties, I am optimistic about having a cure one day for these awful diseases we live with. I started 10 years ago to help bring Lupus patients and those with overlap disease together through humor, education, resources, friendship and more. Since then, we have grown to 200,000 strong per week and have created quite an amazing spoonie family! My motto is, I have Lupus but it doesn't have me -- and I hope to share this with the world <3 When I am not working with Lupus advocacy in some way, I work as a journalist and spend time with my family and rescue dog.


Rochester, NY


Best Kept Secret Patient Leader Hero Best in Show: Instagram Lifetime Achievement Best in Show: Facebook

Marisa has made education and support for lupus and other chronic illness patients a priority in her life for more than 10 years. She’s an incredible advocate, speaker, and resource for patients around the world. She gives everything she has to supporting other patients in different stages of chronic illness and is an inspiration to so many.  — Cassandra

Marisa is a talented writer who suffers from lupus. She knows how to research and communicate issues related to lupus in a very direct and understandable format. That talent is hard to come by. I find her fact based insights extremely valuable as a fellow lupus sufferer, and her optimism keeps me coming back for more.

Marisa shares her story for others who are going through the same experience even though they may differ for others at times. It’s amazing how she tries to find ways to find healthy eating habits and her upbeat attitude  — James

Past Awards Participation

Fifth Annual Health Activist Awards


Best in Show: Community or Forum Lifetime Achievement

Sixth Annual WEGO Health Awards


Healthcare Collaborator: Patient

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