Patient Leader


Columbia, SC

She has taken her own personal life and worked it so that others will learn more about lupus and how to best live with this disease. She is not scared to share the intimidating aspects of the disease.  — Glenn

She is always willing to do whatever it takes to educate about lupus, from passing out information packets she always has on hand to sharing her own life experiences living with the disease.  — Yolanda

Hetlena is so passionate about everything she does. While fighting her own lupus, she pushes through day after day so that she can be such a staunch advocate. She is constantly looking for new ways to get her message out and raise awareness about lupus. Her smile, laugh, and sense of humor are enough to get anyone interested.  — Kimberly

Hetlena consistently advocates for everyone she knows. She is an advocate at heart and this is her passion. Through humor, telling it like it is and an immense amount of empathy, she certainly goes above and beyond.  — Kimberly

This is a blog that not only offers information but support as well, something a survivor needs.


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