For nearly 20 years I have lived with dystonia, a neurological movement disorder. Being involved in support groups has been a big help, which motivates me to pay it forward by doing advocacy work. I have had over 50 articles published, I write a health blog, make educational videos, volunteer as a support group leader for the Dystonia Medical Research Foundation, and spread awareness on TV, newspapers & social media. I also wrote a book, Diagnosis Dystonia: Navigating the Journey, which was recognized by the Michael J. Fox Foundation & featured in Pain-Free Living Magazine & Pain Pathways Magazine. I love helping people work through challenges, which I do as a certified health/life coach.
I’m a Patient Leader