Rare Candace

Patient Leader

Candace Lerman, Esq., is an attorney, consultant, and author of the rare disease blog, RareCandace.com. She earned her Juris Doctorate with a concentration in Health Law at the Shepard Broad School of Law at Nova Southeastern University in Fort Lauderdale, Florida and a certificate in Healthcare Compliance from Seton Hall University School of Law. In addition, she holds a Bachelor’s and Master’s degree in International Affairs from Florida State University. A rare disease patient, Candace researched and repurposed a drug to put her blood disorder into remission twice! She works closely with members of Congress on federal healthcare policy, and can often be found on Capitol Hill meeting with staff on various topics involving health policy. Candace serves on the board of Our Odyssey, an organization dedicated to fostering support and community among young adults living with rare and chronic conditions. Candace is Of Counsel to the Lerman Law Firm (Cathy Jackson Lerman, PA), where her practice centers around health, cannabis, and corporate law. In May 2019, she launched the ITP Patient Driven Research Initiative to help develop better treatments for patients living with her rare disease. Candace was declared in remission for a second time after an N-of-1 study she facilitated in July 2019. Her goal is to use the data collected to inspire clinical trials and further research into finding more pathways for immune suppression to stop platelet destruction.

Location

Coral Springs, FL

Past Awards Participation

2018 WEGO Health Awards

Finalist

Patient Leader Hero

Fifth Annual Health Activist Awards

Nominations

Advocating for Another Health Activist Hero

2019 WEGO Health Awards

Nominations

Hilarious Patient Leader Patient Leader Hero Best in Show: Twitter
Rare Candace

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