Rare Candace

Patient Leader

Candace Lerman, Esq., is an attorney, consultant, and author of the rare disease blog, RareCandace.com. She earned her Juris Doctorate with a concentration in Health Law at the Shepard Broad School of Law at Nova Southeastern University in Fort Lauderdale, Florida and a certificate in Healthcare Compliance from Seton Hall University School of Law. In addition, she holds a Bachelor’s and Master’s degree in International Affairs from Florida State University. A rare disease patient, Candace researched and repurposed a drug to put her blood disorder into remission. She works closely with members of Congress on federal healthcare policy, and serves on the board of Bridge the Gap- SYNGAP Education and Research Foundation. Candace is Of Counsel to the Lerman Law Firm (Cathy Jackson Lerman, PA), where her practice centers around health, cannabis, and corporate law. In May 2019, she launched the ITP Patient Driven Research Initiative to help develop better treatments for patients living with her rare disease.

Location

Coral Springs, FL

Nominations

Patient Leader Hero

Candace is a strong warrior and patient leader. She is going amazing things not only for herself but for other warriors. She spends a lot of quality time in DC advocating for better healthcare, treatments, and research. I am thankful for all she does.  — Jason

Past Awards Participation

2018 WEGO Health Awards

Finalist

Patient Leader Hero

Fifth Annual Health Activist Awards

Nominations

Advocating for Another Health Activist Hero
Rare Candace

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