Rare Candace

Patient Leader

Candace Lerman, Esq., is an attorney, consultant, and author of the rare disease blog, RareCandace.com. She earned her Juris Doctorate with a concentration in Health Law at the Shepard Broad School of Law at Nova Southeastern University in Fort Lauderdale, Florida and a certificate in Healthcare Compliance from Seton Hall University School of Law. In addition, she holds a Bachelor’s and Master’s degree in International Affairs from Florida State University. A rare disease patient, Candace researched and repurposed a drug to put her blood disorder into remission twice! She works closely with members of Congress on federal healthcare policy, and can often be found on Capitol Hill meeting with staff on various topics involving health policy. Candace serves on the board of Our Odyssey, an organization dedicated to fostering support and community among young adults living with rare and chronic conditions. Candace is Of Counsel to the Lerman Law Firm (Cathy Jackson Lerman, PA), where her practice centers around health, cannabis, and corporate law. In May 2019, she launched the ITP Patient Driven Research Initiative to help develop better treatments for patients living with her rare disease. Candace was declared in remission for a second time after an N-of-1 study she facilitated in July 2019. Her goal is to use the data collected to inspire clinical trials and further research into finding more pathways for immune suppression to stop platelet destruction.

Location

Coral Springs, FL

Nominations

Advocating for Another Health Activist Hero Hilarious Patient Leader Patient Leader Hero Best in Show: Twitter

Finalist

Patient Leader Hero

Candace used her diagnosis as inspiration to not only fight to survive, but to raise awareness for all people fighting rare diseases. She continues to evolve in this mission, even to where she has started to raise awareness for treatment for rare diseases in animals as well as humans alike. She's on a mission to live and to let all live!  — Susan

Candace is a strong warrior and patient leader. She is going amazing things not only for herself but for other warriors. She spends a lot of quality time in DC advocating for better healthcare, treatments, and research. I am thankful for all she does.  — Jason

Candace is the epitome of advocacy! Her law degree may be impressive, but it is her constant work in so many realms that impress me! Breaking barriers by pushing to use an unconventional medicine for her rare disease, supporting other advocates consistantly, showing up for WEGO health chats, shining a light on her disease...she is an inspiration!  — Ellie

Rare Candace

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