I was diagnosed with Systemic Juvenile Idiopathic Arthritis (SJIA) at age 11, and had to learn at a very young age how to advocate for myself to overcome barriers in care. Today I’m advocating to change the system for the next generation of patients: I'm the Advocacy Chair for the MA Leadership Board of the Arthritis Foundation, on the Patient + Family Advisory Council and Quality of Care Committee at Tufts Medical Center, on the Patient Advisory Board of Clara Health, and an athlete for the Arthritis National Research Foundation's Racing for a Cure team. More than anything I'd like to change the perception of what's previously been thought possible for juvenile arthritis patients like me!
Anna has 2 characteristics that sets her apart from others. First, she doesn't hold back. Her honesty is refreshing. Secondly, she advocates for fellow advocates. This is a tough business, advocates need support also. — Alan
An inspiration to so many! She doesn't allow her disability to limit the things she want to go after. An advocate who supports others without passing judgement and who's there when needed.
Anna has overcome so many health problems and challenges in getting the proper care for her Systemic Juvenile Rheumatoid Arthritis . She never gives up. Through her blog she raises awareness and gives others with this disease hope and inspiration. She is an ambassador to the Arthritis Foundation and on the patient advisory council at Tufts. — denise
I’m a Patient Leader