Tory Aquino

Patient Leader

When my child was diagnosed with a form of juvenile arthritis I decided to do everything we can to advocate, raise awareness and fundraise for a cure. There are over 300,000 kids living with chronic pain because of this disease. Our goal is to raise awareness and give hope that one day we will have a cure. We have a pages on most social media called Mariah's Movers where we make posters and advocate through the year. We also take our voices to Harrisburg and to Washington DC to advocate yearly. In our community we have an annual carnival to spread awareness about juvenile arthritis and to raise money for a cure! My daughter had juvenile arthritis but juvenile arthritis does not have her!

Nominations

Best in Show: Facebook Advocating For Another

Winner

Advocating for Another

The way she advocates for her daughter is motivating and touching. She will let nothing stand in her way. Tory advocates for ALL children with JRA and is a bright source of inspiration for all. I'm lucky to call her a friend.

Tory spends countless hours sharing and caring for other children with JRA. She spreads knowledge about JRA care, how to advocate, how to raise awareness for the disease, and how to raise funding for the Arthritis Foundation in hopes of finding a cure. She exemplies a selfless person by always giving Mariah all the credit.  — Tina

Mariah, her mom, family, friends and extended network are building such an amazing site for people to come for info, questions, support, etc on the subject of Juvenile Arthritis. They are Passionate to touch every person until everyone knows about Juvenile Arthritis. They are dynamos!  — Kathleen

Tory Aquino

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