DefeattheBeast

Patient Leader

My wife Colleen was diagnosed with multiple system atrophy in 2013 after 5 years of misdiagnoses. A rare and terminal disease needs advocacy so I began the MSA Awareness Facebook page to daily share our journey. In 2014 MSA Coalition leaders nominated me to be the first Caregiver Representative on their board. I then began the Caregiver Representative Facebook page to share recent developments, caregiving resources and an empathetic ear for others facing this devastating disease. Since Colleen passed on 2/4/16 I've taken on the mission of defeating MSA. I currently serve on the Coalition's research grant committee and am the support line volunteer for those needing information or support.

Past Awards Participation

Fourth Annual Health Activist Awards

Nominations

Rookie of the Year

Fifth Annual Health Activist Awards

Nominations

Best Kept Secret
DefeattheBeast

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