As the president and founder of the Interstitial Cystitis Network, I've worked as a health educator, coach and researcher for the interstitial cystitis and pelvic pain community. Founded in 1995, the ICN was one of the first health websites ever built and is the largest and oldest IC community on the web with more than 35,000 active members. We've been rated the top patient website on IC in every study published, including: Harvard Medical School (2011) and the University of London (2013). We also fund and operate the annual Interstitial Cystitis Awareness Month campaign (http://www.icawarenes.org). I have also served, for the past four years, on a US Army funded IC research panel.
I’m a Patient Leader